DEBRA
DEBRA UK exists to provide care and support to improve quality of life for people living with epidermolysis bullosa (EB), and to fund pioneering research to find effective treatments and, ultimately cure(s) for EB.
Our vision is for a world where no one suffers with EB, and we will not stop until this vision becomes a reality.
From discovering the first EB genes to funding the first clinical trial in gene therapy, we have played a pivotal role in EB research globally and have been responsible for making significant progress in advancing diagnosis, treatment, and daily management of EB.
We are committed to making sure that the estimated 5,000+ people living with EB in the UK and their families and carers get the vital and wide-ranging support they need.
The income we generate from our fundraising activities and our network of charity shops, enables us to provide care and support to improve the quality of life for people living with EB today, and fund pioneering research to find treatments and cure(s).
Find out more about how we raise and spend money.